I'd like to know where the patient's freedom of choice and right to informed consent, and right to opt out of any and all databases altogether went. Patients and providers need an avenue to opt out all without any penalty what so ever. In any other case of research and data collection patients have such rights to know what they are getting into and the free choice to be in or out. Why is this any different? They are going to use these things for research and policy puposes and therefore folks should have the right to opt out. Providers and practices too. You can't force a provider to be part of a study, it has always been voluntary, without coersion or fear of penalty.
Al, again I feel the best way to fight all these things is to use the violation of the patient's rights of privacy and other constitutional rights. That is the way to win this thing. Privacy baby plain and simple...
Last edited by hockeyref; 02/14/2008 9:47 PM. Reason: Clean it up
